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To Benefit: Hope4Harper
Run 4 Hope
Harper Elle Howard – aka Harperpotamous – only lived five short years in this world, but her legacy lives on through the millions of people who suffer from seizures. Harper suffered from a disorder so rare, it doesn’t even have a name and is simply referred to as CDKL5, the gene it effects. She had up to 40+ seizures per day and when CDKL5 finally took her life she was the first to donate her brain and living tissue to scientific research.
By supporting the charity started by Harper’s parents you will help science use the gift Harper left behind in finding a way to help those living with seizures live a better quality of life. Run or walk anytime, anywhere and provide HOPE to those living with debilitating seizures. All registrants will receive this adorable and inspirational hippopotamus angel spinner medal – Hippos were Harper’s favorite animal, in case you hadn’t guessed.
Hope4Harper is a nonprofit organization created in honor of Harper Elle Howard, to educate, raise funds and support scientific research for the CDKL5 disorder and similar seizure related diseases. Not much is known about the cause and spectrum of the disorder, which is why research is so important. With continued research and awareness of CDKL5, we hope to build a more comprehensive understanding of the spectrum and disorder. Together we can make a significant impact on this disease. Hope4Harper carries with it Harper’s purpose and legacy. Harper’s brain is the first to be donated to CDKL5 research. The impact of it is immeasurable. Every project we support uses a piece of Harper in their research.
Virtual Strides Partner Event: This event is part of the Virtual Strides Partners Program. Hope4Harper will receive 100% of the net proceeds from this event after Virtual Strides’ partner costs are deducted.