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To Benefit: Loeys-Dietz Syndrome Foundation
Move Your Feet
Loeys-Dietz Syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Since then, other groups around the world have described additional genetic causes of Loeys-Dietz syndrome.
Individuals with LDS exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. Information about the natural history and management of individuals with LDS continues to evolve.
Register to run or walk a virtual 5k anywhere and anytime you want to support the cause. All participants will receive this symbolic heart medal. You’ll be doing your body good and helping to raise awareness for this valuable foundation!
